Recently, while scouring the World Wide Web, I came across this website,
and it is fantastic (per my title).
Not only is their website great, but so is their Facebook page.
So please check them out, share, and become more informed.
Enjoy the following...
You Know You Have MS When
You are probably all too familiar with the
typical symptoms
associated with having MS, like spasticity, cognitive impairment, fatigue, and difficulty with mobility, among many others. However, there’s so much more to having MS
than what one would find in a textbook. We wanted to know more about your
everyday life with MS, so we asked our Facebook
community to respond to the
statement, “You know you have MS when____.” We heard from over 150 of you, and
here’s what you had to say!
Your difficulty with mobility takes its toll
·
You walk like your 76
year-old mother and you’re only 41
·
When you trip a lot,
and have double vision
·
Your legs go out from
under you and your brain doesn’t know it
·
When you’re standing
still on a level floor and just tip over
·
You keep tripping up
over nothing and you continually drop things
·
When you can’t speak
correctly and have to hold onto walls because your balance is off
·
When no one realizes
how hard you’re trying to just keep up but everyone just keeps leaving you
behind
·
You fall over when
standing still, or stop mid sentence because you’ve lost your train of thought
·
You trip on air when
you’re walking on empty ground
·
When you feel good
enough to walk the dog and your legs feel like they are encased in cement after
just going around the block
·
When you can’t play
with your kids or take a walk with your husband; when at 42 your kids are
taking care of you
·
Your hands are asleep
and they don’t wake up, of course your feet too, hence tripping and dropping
·
When I kept falling,
tripping, and my legs hurt
·
You walk like you are
dancing to Michael Jackson’s “Thriller”
·
When your knees are
locked as though there’s a magnet holding them together!
·
You get to work and
wonder if you can lift your legs to get up the four stairs to get into the
building
·
You trip over
something earlier in the day because of ‘drop foot’ on the left leg and before
bedtime you look at your scraped toes and say “what the heck happened to my
toes
·
Your legs are numb and
you can’t walk very well
·
You can’t stand
without assistance
When everybody knows your name
·
When you know the MRI
tech by his first name, and he remembers which arm you prefer to use for the
contrast dye
·
When the MRI guy knows
you by name
You appear to have had too much to drink
·
When you look drunk
walking BUT have not had any or been near any alcohol!
·
You walk like a drunk
even though you don’t drink
·
When you can’t pass a
field sobriety test sober
·
When u walk like
you’re drunk
·
You walk like you’re
drunk and haven’t had the pleasure of drinking
The weather takes a huge toll on your body
·
Sunlight/heat/humidity
in the summertime drive you indoors like a vampire, when previously it was your
favorite season of the year
·
Hot weather kicks your
b-u-t t
·
You’re the only one in
the room saying, ‘Is it hot in here?’
·
When 70 degrees feels
like you’re standing inside of an oven & everything goes numb and blurry
·
When you can’t do any
outdoor activities due the heat
·
When 69 degrees is too
hot for you and you sleep with fans blowing on high at you with multiple ice
packs
·
When summer heat hits
the triple digits and you can barely breathe
·
What was the question?
·
You are in the middle
of a conversation and you forget what you were supposed to be talking about or
you can’t remember the word you wanted to say!
·
You lose your train of
thought mid-sentence
·
When you walk into a
room and forgot why you went in there? Or going out to eat and your brain is
literally blank when you’re supposed to choose
·
You have the hardest
times trying to say what you want to say because your words come out making no
sense
·
When your words get
jumbled up at the end of a sentence
·
Umm…what was the
question?
·
When I struggle to
speak and can’t form and remember words
·
You describe your
symptoms and your neurologist looks at you as if you were speaking Greek
·
When you forget
everything
·
You get confused when
there is too much going on around you; you can’t even place an order at a fast
foot place
·
When you can’t
remember anything and can’t get your words together
·
You can’t remember
anything
·
You forgot you had MS
People assume that you are fine
·
When everyone thinks
you are normal and they say let’s go, get with it
·
Your friends &
family think you’re fine (you look the same) and are just being anti-social
·
When I have all these
problems mentioned but I “don’t look sick!”
·
When you hear “but you
look so good”
·
Everyone thinks you
LOOK ok so you should be fine.
·
You get angry hearing”
gee, you can be feeling anything bad…you look too good”
·
When you want to hit
the next person to say “But you look so good!
·
You feel awful and
can’t think straight but look awesome
·
When you never, ever
feel like you’re well rested or have gotten enough sleep
·
You’re so exhausted
(and you just slept most of the night) and you get worn out just getting up to
wash your hair
·
When you wake after 8
hours of sleep (if it’s a good night without insomnia) and feel like someone
used your body to run a marathon, got mugged on the way back and returned it
for you to get out of bed with
·
When my daughters tell
me all I do is sleep and that I’m sick all the time
·
You get a full night
of sleep and wake up tired
·
When everyone says, ”
You look tired. What’d you do last night” and you reply “Nothing. I’m always
tired
·
You’re too tired to
get up but you just end up lying around in bed with anxieties about what you
should be doing
·
You wake up with a
little bit of energy, bounce upstairs & fix breakfast. Ah, there went the
energy. Exhausted by this simple task, you must lay down again to rest
·
Your battery depletes
after 45 minutes of walking and you become a complete physical mess on your
feet
·
When you are tired or
fatigued all the time
·
You can’t find the
energy to take a shower
·
You are so fatigued
you can hardly get out of the chair to take a shower, and you know when you
finish you won’t have the energy left to go anywhere or do anything, even in
the wheelchair
·
You’re tired and dizzy
all the time
·
You are so tired that
you cry and you do, and no amount of sleep helps
You seem to be in constant pain
·
Your body feels like
you got into a fight with Mike Tyson, got run over by a semi, and were then
kicked over to the side of the road. You can’t get up, even if you wanted to.
You are in excruciating pain, everywhere, and it feels like you’re half dead
·
When you’re screaming
from pain as what feels like loose electric wires whip out of control at the
base of your spine
·
Limbs hurt for no
reason
·
When you feel like you
are being stabbed and you tingling feeling all over
·
Your vision is blurred
but you never complain and you smile regardless
·
When your feet feel
like they are on fire or frostbite
·
When you get those
unexpected zaps of excruciating pain in your face, arm, leg, and you have stand
there trying not to scream
·
When you’re screaming
from pain as what feels like loose electric wires whip out of control at the
base of your spine
·
When you feel
continual electric shocks down one whole side of your body that are strong enough
to make you gasp aloud. When your knee just buckles when you least expect it to
You feel like you are losing control of your
body
·
When the top of you
starts to walk and your legs don’t get the memo in time
·
Your head goes one way
and your legs another
·
When you have to look
at your hand and tell it to move
·
When you’re eating and
your arm suddenly jerks and the food goes flying across the table
·
One of your limbs
decides it’s just not going to function, right about when you need it to
·
When I pee my pants in
the middle of a store
·
When you are in the
market and the fireman are grocery shopping and they stop you because your face
is drooping and you are confused and they think you have had a stroke
·
You do a great
impression of Ray Charles and go blind
·
When you go from 0 to
pee in two seconds flat! Where’s the restroom
·
When you wake up one
morning and you’re paralyzed on one side of your whole body
You feel uncomfortably numb
·
Your legs r numb and
your vision isn’t right
·
When you can’t feel
your fingers but you feel like you’re walking on rocks
·
Numbing leg and a hug
that does not stop hugging
·
You feel like you are
sitting in a wet bathing suit because your b-u-t t is numb
·
When you are numb and
tingly and have burning sensations all over
·
When you feel like you
have warm pee running down your legs and go to feel and nope it just your
nerves
·
Your legs feel like
rubber
